Assessment of the Burden Within the Dyad Patient/Caregiver (RAPSODIE)

This study has been completed.
Sponsor:
Collaborators:
Unité de REcherche en sciences Cognitives et Affectives URECA EA1059
Université Lille Nord de France - Université de Lille 3
Information provided by (Responsible Party):
Centre Oscar Lambret
ClinicalTrials.gov Identifier:
NCT00921232
First received: May 29, 2009
Last updated: July 20, 2012
Last verified: July 2012

May 29, 2009
July 20, 2012
April 2007
February 2008   (final data collection date for primary outcome measure)
Caregiver Reaction Assessment (CRA scale) completed by patient (hetero-perception) and its caregiver (auto-perception) [ Time Frame: At baseline, to the announcement of the exclusive palliative care ] [ Designated as safety issue: No ]
Same as current
Complete list of historical versions of study NCT00921232 on ClinicalTrials.gov Archive Site
  • Perception of the burden by the patient and its caregiver: search for potential predictive factors of the burden by statistic analysis HADS (The Hospital Anxiety and Depression Scale FRI (The Family Relationship Index) [ Time Frame: At baseline, to the announcement of the exclusive palliative care ] [ Designated as safety issue: No ]
  • Search for factors influencing the return at home of the life-ending patients by statistic analysis [ Time Frame: Death ] [ Designated as safety issue: No ]
Same as current
Not Provided
Not Provided
 
Assessment of the Burden Within the Dyad Patient/Caregiver
Crossed Assessment of the Burden Within the Dyad Patient/Caregiver: Analysis of Explanatory Factors and Consequences for Return at Home of the Life-ending Patient

This study is about the patients life ending and their caregiver, when a return to home is planned.

This is a behavioral sciences study (= interventional study for french law)

Not Provided
Interventional
Not Provided
Intervention Model: Single Group Assignment
Masking: Open Label
Palliative Care
Behavioral: Questionnaires

During a consultation:

  • 3 questionnaires (HADS, FRI, CRA)
  • and a form for the sociodemographic data
dyad
life-ending patient and its caregiver
Intervention: Behavioral: Questionnaires
Not Provided

*   Includes publications given by the data provider as well as publications identified by ClinicalTrials.gov Identifier (NCT Number) in Medline.
 
Completed
139
February 2008
February 2008   (final data collection date for primary outcome measure)

Inclusion Criteria:

  • Patient > 18 years old
  • Cancer for which no curative treatment is envisaged
  • Palliative treatment only
  • For the caregiver: designated by the patient like the referring individual
Both
18 Years and older
No
Contact information is only displayed when the study is recruiting subjects
France
 
NCT00921232
RAPSODIE
No
Centre Oscar Lambret
Centre Oscar Lambret
  • Unité de REcherche en sciences Cognitives et Affectives URECA EA1059
  • Université Lille Nord de France - Université de Lille 3
Principal Investigator: Nicolas PENEL, MD Centre Oscar Lambret
Centre Oscar Lambret
July 2012

ICMJE     Data element required by the International Committee of Medical Journal Editors and the World Health Organization ICTRP